Publications

This page contains links to publications produced by members of the AIIHPC PCRN and ECRF.

Spotlight on Publications

Estimating national prevalence of life-limiting conditions amongst infants, children, and adolescents using administrative hospital data in the absence of a unique health identifier; evidence from Ireland

Estimating the total number of children with a life-limiting condition or serious illness has been identified as an important first step in determining how many children might need palliative care in a country or region. This study estimated prevalence of life-limiting conditions amongst children aged 0–19 in Ireland in 2019 and 2024. To read more click here. Authored by PCRN member Dr Samantha Smith from Trinity College Dublin, Orla Murphy Voices4Care member from AIIHPC and Milford Care Centre, PCRN member Dr Peter May from Trinity College Dublin, Dr Mary Rabbitte from AIIHPC, Professor Suzanne Guerin from University College Dublin, ECRF member Dr Joanne Balfe from Children’s Health Ireland, and their colleagues.

Personal and professional perspectives on advance care planning among palliative care staff: An observational study

Advance care planning enables individuals to communicate future healthcare preferences, yet engagement remains low internationally. This cross-sectional quantitative study with a qualitative component examined advance care planning engagement among 105 Irish palliative care professionals for themselves, their loved ones, and patients, and associations with psychological factors. To read more click here. Authored by ECRF member Tadhg Gleeson, PCRN member Dr Regina McQuillan from St. Francis Hospice and Beaumont Hospital, and PCRN member Dr Monika Pilch from University College Dublin.

Evaluating the quality, reliability and readability of digital and artificial intelligence resources for adults with cancer who have significant caregiving responsibilities for children

Families often report searching the internet for guidance on how best to support children when a significant adult has cancer. This study aimed to identify and evaluate the quality, reliability, readability and content of websites, videos, and artificial intelligence (AI) resources available to adults with cancer who have caregiving responsibilities for children. To read more click here. Authored by ECRF member Dr Rohan Anand, PCRN member Prof Cherith J. Semple, PCRN member Dr Jeffrey R. Hanna from Ulster University, and their colleagues.

Serious mental illness and cancer: A call to action for equitable care

Cancer advances are not distributed equitably among many segments of the population. Specifically, individuals with serious mental illness face compounded disparities in cancer detection, treatment, and survival. This review explores the intersection of serious mental illness and cancer care starting with the conceptual background and its importance related to cancer outcomes and the delivery of ethical care to highlight unmet needs and a multitude of barriers. To read more click here. Authored by PCRN member Dr Paul D’Alton from University College Dublin and colleagues.

Development and pilot validation of a European ethical framework for decision-making in dementia care

Dementia care involves ethically complex situations across diverse clinical, social care, and policy contexts, yet practice-oriented ethical guidance remains limited. This article has presented the Ethical Framework for Decision-Making in Dementia Care (EDEM-Framework), detailing its development, its pilot external validation and its proposed strategies for application, implementation, and dissemination across different dementia care systems. To read more click here. Authored by PCRN member Dr Regina McQuillan from St Francis Hospice and colleagues.

2026 Publications

Research Priorities Relevant to Dementia Care in Long-Term Care Facilities: A Scoping Review of Dementia Research Priority-Setting Exercises.

Connelly JP, Fitzpatrick R, Müller N, Smith V, Leroi I.

European Association of Palliative Care White Paper on research priorities for family caregiving in palliative care: A systematic review of reviews.

Gardiner C, Crawford E, Platts C, Reid J, Gonella S, Odom JN, DeVleminck A, Loucka M, Wallin V, Penner J, Payne S, Hudson P.

Contexts, mechanisms and outcomes of home-based palliative care implementation in low- and middle-income countries: A realist review.

Le DD, Duong KD, Peeler A, Hocaoglu M, Normand C, Higginson I, Harding R.

Assessment and Reporting of Self Harm and Suicidal Ideation Among Adolescents and Young Adults with Cancer: A Mixed Methods Systematic Review.

Üzar-Özçetin YS, Öcalan S, Wei W, Elyeli K, Timmins F.

Estimating national prevalence of life-limiting conditions amongst infants, children, and adolescents using administrative hospital data in the absence of a unique health identifier; evidence from Ireland.

Smith S, Delamere T, Fraser LK, Murphy O, May P, McElligott F, Devins M, Horne T, Rabbitte M, Guerin S, O’Hara S, Dillon M, Balfe J.

Mapping of key performance indicators for palliative care in intensive care settings: A scoping review protocol.

King Y, May P, Brady AM.

An exploratory study of the feasibility and acceptability of a digital storytelling intervention in paediatric palliative care in Ireland.

Safarifard R, Molati A, Corcoran Y, Kiernan G, Courtney E, Mitchell J, Akard TF, Lambert V.

“Golden” moments and more in grief talk: Healthcare professionals’ approaches to discussing loss and grief with parents of children with severe neurological impairment.

Brennan E, Guerin S.

Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care.

May P, Nikram E, Johansson T, Clarke G, Mitchell S, Higginson IJ, Sleeman KE, Murtagh FEM.

Personal and professional perspectives on advance care planning among palliative care staff: An observational study.

Gleeson T, McQuillan R, Pilch M.

Characteristics of older people who experience high-cost hospital care at the end of life and report low-satisfaction: Evidence of low-value care from bereaved carer surveys in England.

Jin S, Higginson IJ, Bone AE, Etkind SN, Normand C, May P.

‘You’ve Given Me My Voice’-Enhancing Engagement in Exercise Oncology Research: A Patient and Public Involvement Approach to Co Designing a Pre Radiotherapy Exercise Programme With People Living With Lung Cancer.

Beggs M, Reid J, Hanna GG, Edgar A, Cotter S, Burke D, Prue G.

2025 Publications

What are the unmet needs in people affected by dementia? A scoping review of reviews.

Koh WQ, Roes M, de Vugt M, Sezgin D, Gonçalves-Pereira M, Müller N, Diaz A, Casey D, Ingram C, Walden AK, Thyrian JR, Neal D, Comas A, Hopper L.

The cost of drug repurposing: parallel economic evaluation of mirtazapine for severe breathlessness in the multinational BETTER-B trial.

May P, Normand C, Oluyase AO, Smith S, Brown ST, Maddocks M, Costantini M, Bajwah S, Kahnert K, Simon ST, Ryan K, Currow DC, Johnson MJ, Hart SP, Krajnik M, Tanzi S, Bolton CE, Janowiak P, Turola E, Jolley CJ, Mather H, Murden G, Ghirotto L, Farsides B, Brown JM, Higginson IJ; BETTER-B consortium.

The Impact of Dietary Intake and Nutritional Status on the Oral Health of Older Adults Living in Care Homes: A Scoping Review.

Sallam A, McCorry NK, Harvey M, Heilmann A, Lappin C, McEvoy C, Mitchell G, Watson S, O’Neill C, Tsakos G, Woodside J, Brocklehurst P, Campbell KBD, McKenna G.

Evaluating portal-enabled elicitation of patients’ health-related values in solid tumor oncology: A qualitative content analysis.

Sha C, Santos E, Gilliland J, Lynch KA, Rosa WE, Nelson JE, Epstein AS.

Perspectives of healthcare professionals on the purpose, design and content of a health communication passport for stroke.

O’ Leary N, Barrett A, Kelly H.

A LangChain-based pipeline for one-shot synthetic text generation using generative pre-trained transformers in palliative care research.

Ronan I, Crowley P, Rombouts E, Cornally N, Saab MM, Murphy D, Tabirca S.J

Multimorbidity patterns in Irish adults ageing with and without an intellectual disability using network analysis and association rules: A comparative analysis using data from the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA).

Ryan C, Hernández B, Burke E, McCallion P, McCarron M.

Adherence to guideline-directed medical treatments in heart failure. A scientific statement of the Heart Failure Association (HFA) of the ESC and the ESC Working Group on Cardiovascular Pharmacotherapy.

Savarese G, Lindberg F, Cannata A, Adamo M, Ambrosio G, Ameri P, Anker MS, Bäck M, Bayes-Genis A, Ben Gal T, Braunschweig F, Chioncel O, D’Elia E, El-Tamimi H, Filippatos G, Girerd N, Hill L, Jankowska E, Khunti K, Lewis BS, Moura B, Amir O, Paolillo S, Piepoli M, Shehab A, Simpson M, Skouri H, Stolfo D, Tocchetti CG, Vitale C, Volterrani M, von Haehling S, Wassmann S, Yilmaz MB, Kaski JC, Dobrev D, Metra M, Rosano.

The experience of loneliness in adults with acquired brain injury: a qualitative systematic review.

Muir-Little A, Berry E, Rauch R, Graham-Wisener L.

Determinants of the implementation, integration, and sustainability of new non-professionally affiliated psychosocial support roles: a scoping review.

Fulham-McQuillan H, Murphy M, Hilliard C, Sheaf G, Brenner M, Higgins A.

Health Literacy, Self-Management and Patient-Reported Outcomes in Prostate Cancer Survivors: A Mixed Methods Systematic Review.

Sheehan S, Bernués-Caudillo L, de Brún A, Drury A.

The Clinical Utility of Real-Time Patient-Reported Outcomes in Cell Therapy Recipients.

Meehan KR, Doherty JR, King JR, Caldon KL, Hayes CA, Hill JM, Lizcano RA, Holthoff MM, O’Donnell EA, Mills P, Zhao W, Holt KR, Nelson EC, Tosteson ANA, Van Citters AD.

2024 Publications

Does a palliative medicine service reduce hospital length of stay and costs in adults with a life-limiting illness?-a difference-in-differences evaluation of service expansion in Ireland.

Matthews S, Hurley E, Johnston BM, Kane P, Ryan K, Tiernan E, Normand C, May P.

Place of Death for Adults Receiving Specialist Palliative Care in Their Last 3 Months of Life: Factors Associated With Preferred Place, Actual Place, and Place of Death Congruence.

Smith S, Brick A, Johnston B, Ryan K, McQuillan R, O’Hara S, May P, Droog E, Daveson B, Morrison RS, Higginson IJ, Normand C.

Do doctors appreciate that social isolation and loneliness are health issues?

Lawlor B, O’Sullivan R, Leavey G, Lubben J.

A National Evaluation of Undergraduate Nursing and Midwifery Curricula.

Ryder M, Browne F, Curtin M, Connolly M, Furlong E, Geraghty S, Larkin J, Prendergast M, Meegan M, Brenner M.

Using nominal group technique to compare patients’ and clinicians’ perspectives on symptoms in multiple myeloma to inform the development of a self management tool for patients with relapsed myeloma.

Cormican O, Dowling M.

Improving meaningful activity and meaningful engagement for residents in long-term care settings.

Bradley R, Ryan A, Penney S.

Good quality end-of life care for people with an intellectual disability: A critical interpretive synthesis protocol.

Haigh M, McCarron M, McCallion P, Pavithra P, McMahon M.

From the ground up: stakeholders’ representations of the Irish longitudinal study on ageing (TILDA).

Üzar-Özçetin YS, Connolly M, Frawley T, Drennan J, Timmins F, Barnard M, Blake C, Di Placido M, Donnelly S, Doyle G, Fealy G, Fitzgerald K, Gallagher P, Guerin S, Mangiarotti E, McNulty J, Mucheru D, O’ Neill D, O’ Donnell D, Ryder M, Segurado R, Stokes D, Wells J, Čartolovni A.

Direct healthcare costs in the first 2 years of life: A comparison of screened and clinically diagnosed children with cystic fibrosis – The Irish comparative outcomes study of CF (ICOS).

Somerville R, Fitzgerald C, Segurado R, Kapur K, George S, Bhardwaj N, Linnane B, O’Ceilleachair A, Staines A, Fitzpatrick P.

What Helps or Hinders End-of-Life Care in Adult Intensive Care Units in Saudi Arabia? A Mixed-Methods Study Protocol.

Almalki N, Boyle B, O’Halloran P.

Exploring the supportive care needs of families affected by pancreatic cancer: a mixed-methods study protocol.

Anderson T, Prue G, Graham-Wisener L, McLaughlin S, Mitchell G.

Exploring the experiences of GPs in establishing and operating the chronic disease management programme in clinical practice in Ireland. A qualitative study.

Buckley S, O’ Flynn J, Foley T.

2023 Publications

High flow nasal cannula versus noninvasive ventilation in the treatment of acute hypercapnic respiratory failure: A systematic review and meta-analysis

Fahey AC, O’Connell M, Cornally N, Saab MM.

A human rights-based approach

McIlfatrick S.

Circadian rhythm disorders in patients with advanced cancer: a scoping review

Gouldthorpe C, Power J, Davies A.

Informal caregivers’ experiences of transitioning during end-of-life care-A scoping review

McCarthy B, Timmins F, Eustace-Cook J, Connolly M.

Interventions to improve the appropriate use of polypharmacy for older people

Cole JA, Gonçalves-Bradley DC, Alqahtani M, Barry HE, Cadogan C, Rankin A, Patterson SM, Kerse N, Cardwell CR, Ryan C, Hughes C.

Supporting family carers in general practice: a scoping review of clinical guidelines and recommendations

Cronin M, McLoughlin K, Foley T, McGilloway S.

Vital Signs in Palliative Care: A Scoping Review

Power J, Gouldthorpe C, Davies A.

Unmet care needs of women who have undergone breast cancer surgery: A scoping review

Ke Q, Timmins F, Furlong E, Stokes D.

Taste disturbance in patients with advanced cancer: a scoping review of clinical features and complications

Hannon M, Shaw A, Connolly M, Davies A.

Dementia research in Ireland: What should we prioritise?

Rogan C, Rock B, Begley E, Boland B, Brazil K, Diaz-Orueta U, Donnelly S, Foley M, Foley T, Hannigan C, Hopper L, Keogh F, Lawlor B, Leroi I, O’Neill C, O’Philbin L, Pertl M, Trépel D, Kennelly S.

What Are the Psychosocial Needs of Adolescents and Young Adults with Cancer? A Systematic Review of the Literature

Neylon K, Condren C, Guerin S, Looney K.

Availability and use of web-based interventions for patients with head and neck cancer: a scoping review

Kelly R, Gordon P, Thompson R, Semple C.

2022 Publications

Psychometric validation of the death literacy index and benchmarking of death literacy level in a representative uk population sample

Graham-Weisner L, Toner P, Leonard R, Groarke JM.

Interventions for interpersonal communication about end of life care between health practitioners and affected people

Ryan RE, Connolly M, Bradford NK, Henderson S, Herbert A, Schonfeld L, Young J, Bothroyd JI, Henderson A.

Advanced breast cancer education for cancer nurses: A systematic review

Drury A, Dowling M, Diez de Los Rios de la Serna C, Erdem S, Aroyo V, Wiseman T, Bağçivan G.

Hospital-Based Palliative and End-of-Life Care in the COVID-19 Pandemic: A Scoping Review

Connolly M, Bell M, Lawler F, Timmins F, Ryder M.

Psychosocial vulnerability among carers of persons living with a chronic illness: A scoping review

Cormican O, Meskell P, Dowling M.

Impact analysis of heart failure across European countries: an ESC-HFA position paper

Rosano GMC, Seferovic P, Savarese G, Spoletini I, Lopatin Y, Gustafsson F, Bayes-Genis A, Jaarsma T, Abdelhamid M, Miqueo AG, Piepoli M, Tocchetti CG, Ristić AD, Jankowska E, Moura B, Hill L, Filippatos G, Metra M, Milicic D, Thum T, Chioncel O,

Consideration of Symptom Management in Advanced Heart Failure

Connolly M, Ryder M.

Conversations in dementia with Lewy bodies: Resources and barriers in communication

Lindeberg S, Müller N, Samuelsson C.

Experiences Related to Patients and Families’ Expression of Spiritual Needs or Spiritual Support Within Healthcare Settings During the COVID-19 Pandemic: A Scoping Review

Connolly M, Timmins F.

Providing Spiritual Care to In-Hospital Patients During COVID-19: A Preliminary European Fact-Finding Study

Timmins F, Connolly M, Palmisano S, Burgos D, Juárez LM, Gusman A, Soriano V, Jewdokimow M, Sadłoń W, Serrano AL, Caballero DC, Campagna S, García-Peñuela JMV.

Living through liminality? Situating the transitional experience of parents of children with mucopolysaccharidoses

Somanadhan S, Brinkley A, Larkin PJ.

Rationalising Antipsychotic Prescribing in Dementia (RAPID) complex intervention: A mixed-methods feasibility intervention study

Walsh KA, Byrne S, O’Riordan A, McSharry J, Browne J, Irving K, Hurley E, Timmons S.

2021 Publications

Interviewing as a vehicle for theoretical sampling in grounded theory. International Journal of Qualitative Methods

Foley G, Timonen V, Conlon C, Elliott O’Dare C.

Perceptions of fatigue and fatigue management interventions among people with multiple sclerosis: a systematic literature review and narrative synthesis

Míde Power, Nora Arafa, Anke Wenz, Geraldine Foley

Mindfulness as a well-being initiative for future nurses: a survey with undergraduate nursing students

Veigh CM, Reid J, Carswell C, Ace L, Walsh I, Graham-Wisener L, Rej S, Potes A, Atkinson K, Edginton T, Noble H.

Developing Guidance on Implementing Volunteer-Led Intradialytic Arts Activities in Haemodialysis Units

Wilson A, Carswell C, Noble H.

Re: cancer-related fatigue-pharmacological interventions: systematic review and network meta-analysis

Taheny K, Johnston B, Ryan K.

Corrigendum to ‘Initiating advance care planning on end-of-life issues in dementia: Ambiguity among UK and Dutch physicians’ [Archives of Gerontology and Geriatrics 65 (2016) 225-230/AGG 3314]

Van der Steen JT, Galway K, Carter G, Brazil K.

Successful implementation of a trans-jurisdictional, primary care, anticipatory care planning intervention for older adults at risk of functional decline: interviews with key health professionals

Corry DAS, Carter G, Doyle F, Fahey T, Gillespie P, McGlade K, O’Halloran P, O’Neill N, Wallace E, Brazil K.

Medical management of malignant bowel obstruction in patients with advanced cancer: 2021 MASCC guideline update

Davis M, Hui D, Davies A, Ripamonti C, Capela A, DeFeo G, Del Fabbro E, Bruera E.

Mindfulness-Based Interventions for Undergraduate Nursing Students in a University Setting: A Narrative Review

McVeigh C, Ace L, Ski CF, Carswell C, Burton S, Rej S, Noble H.

Living through liminality? Situating the transitional experience of parents of children with mucopolysaccharidoses

Somanadhan S, Brinkley A, Larkin PJ.

Hospital-Based Palliative and End-of-Life Care in the COVID-19 Pandemic: A Scoping Review

Connolly M, Bell M, Lawler F, Timmins F, Ryder M.

Resistance exercise and nutritional interventions for augmenting sarcopenia outcomes in chronic kidney disease: a narrative review

Noor H, Reid J, Slee A.

2020 Publications

Confused about theoretical sampling? Engaging theoretical sampling in diverse grounded theory studies

Conlon C, Timonen V, Elliott O’Dare C, O’Keeffe S, Foley G.

The Heart of Living and Dying: Upstreaming Advance Care Planning into Community Conversations in the Public Domain in Northern Ireland.

Mc Kenna D, O’Shea J, Tanner L.

Health system foundations for Sláintecare implementation in 2020 and beyond – co-producing a Sláintecare Living Implementation Framework with Evaluation: Learning from the Irish health system’s response to COVID-19. A mixed-methods study protocol [version 1; peer review: 2 approved]

Burke S, Thomas S, Stach M, Kavanagh P, Magahy L, Johnston BM, Barry S.

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland [version 2; peer review: 2 approved]

Somanadhan S, Nicholson E, Dorris E, Brinkley A, Kennan A, Treacy E, Atif A, Ennis S, McGrath V, Mitchell D, O’Sullivan G, Power J, Lawlor A, Harkin P, Lynch SA, Watt P, Daly A, Donnelly S, Kroll T.

Linking death registration and survey data: Procedures and cohort profile for The Irish Longitudinal Study on Ageing (TILDA) [version 2; peer review: 3 approved]

Ward M, May P, Briggs R, McNicholas T, Normand C, Kenny RA, Nolan A.

Projecting future health and service use among older people in Ireland: an overview of a dynamic microsimulation model in The Irish Longitudinal Study on Ageing (TILDA) [version 2; peer review: 2 approved]

May P, Normand C, Matthews S, Kenny RA, Romero-Ortuno R, Tysinger B.

Remembering people with dementia during the COVID-19 crisis [version 2; peer review: 4 approved]

O’Shea E.

Resource allocation decision-making in dementia care with and without budget constraints: a qualitative analysis [version 2; peer review: 2 approved]

Keogh F, Pierse T, O’Shea E, Fitzgerald C, Challis D.

Family carers’ perspectives of the Alzheimer Café in Ireland [version 2; peer review: 4 approved]

Teahan Á, Fitzgerald C, O’Shea E.

Health inequities in unscheduled healthcare for children with intellectual disabilities in Ireland: a study protocol [version 2; peer review: 2 approved]

Nicholson E, Doherty E, Somanadhan S, Guerin S, Schreiber J, Bury G, Kroll T, Raley M, McAuliffe E.

Approaches to the initiation of life-sustaining technology in children: A scoping review of changes over time

Alexander D, Eustace-Cook J, Brenner M.

The core features and outcomes of a specialised camp programme for children with life-limiting conditions and their families: A qualitative multi-perspective approach

Mulligan S, Guerin S, McKiernan A, Brown A, Hartnett M, Gray D, Kiernan G

2019 Publications

Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland

Scott D, Hudson P, Charnley K, Payne C, Westcott G.

Is Inpatient Hospice Care Clinically Effective? Using Phase of Illness to Evaluate Care Outcomes for Patients Admitted to a Specialist Palliative Care Unit in Ireland

Lucey M, O’Reilly M, Currow D, Eagar K, Walsh D, Conroy M, Twomey F, O’Reilly V, Doherty M, Coffey S, Sheridan J, Moran S.

Examining the support needs of older male spousal caregivers of people with a long-term condition: A systematic review of the literature

Fee A, McIlfatrick S, Ryan A.

The Role, Education, and Experience of Health Care Assistants in End-of-Life Care in Long-Term Care: A Scoping Review

Cronin U, McCarthy J, Cornally N.

Advance care planning in COPD: guidance development for healthcare professionals

Meehan E, Sweeney C, Foley T, Lehane E, Kelleher A, Hally R, Shanagher D, Korn B, Rabbitte M, Detering K, Cornally N.

Communication between primary and secondary care: deficits and danger

Dinsdale E, Hannigan A, O’Connor R, O’Doherty J, Glynn L, Casey M, Hayes P, Kelly D, Cullen W, O’Regan A.

Measuring adherence to therapy in apparent treatment-resistant hypertension: a feasibility study in Irish primary care

Hayes P, Casey M, Glynn LG, Molloy GJ, Durand H, O’Brien E, Dolan E, Das K, Newell J, Finn D, Harhen B, Conneely A, Murphy AW.

Intensive home care supports, informal care and private provision for people with dementia in Ireland

Carter L, O’Neill S, Keogh F, Pierce M, O’Shea E.

Key stakeholders’ perspectives on the development of a national transfer document, for older persons, when transferring between the residential and acute care settings: A qualitative descriptive study

O’Reilly P, O’Brien B, Graham MM, Murphy J, Barry L, Doody O, Fahy A, Hoey C, Kiely M, Lang D, Meskell P, O’Doherty J, O’Keefe J, Tuohy D, Coffey A.

The need for a specific definition of cardiac cachexia

Carson MA, Reid J, Hill L, Fitzsimons D.

Assessing the impact of dementia inclusive environmental adjustment in the emergency department

Bracken-Scally M, Keogh B, Daly L, Pittalis C, Kennelly B, Hynes G, Gibb M, Cole N, McMahon CG, Lawlor B, McCarron M, Brady AM.

Examining constipation assessment and management of patients with advanced cancer receiving specialist palliative care: a multi-site retrospective case note review of clinical practice

McIlfatrick S, Muldrew DHL, Beck E, Carduff E, Clarke M, Finucane A, Graham-Wisener L, Larkin P, McCorry NK, Slater P, Hasson F.

2018 Publications

Delirium in adult cancer patients: ESMO Clinical Practice Guidelines

Bush S, Lawlor P, Ryan K, Centeno C, Lucchesi M, Kanji S, Siddiqui N, Morandi, A, Davis D, Laurent M, Schofield N, Barallat E, Ripamonti C.

Condition-Specific Pamphlets to Improve End-of-life Communication in Long-term Care: Staff Perceptions on Usability and Use

Sussman T, Kaasalainen S, Lee E, Akhtar-Danesh N, Strachan PH, Brazil K, Bonifas R, Bourgeois-Guérin V, Durivage P, Papaioannou A, Young L.

International reflections on caring for people with advanced dementia

Yumoto Y, Kernohan WG, Morioka N, Ogata Y.

Providing care for a person with late-stage dementia at home: What are carers’ experiences?

Dempsey L, Dowling M, Larkin P , Murphy K.

Ethical issues in nursing home palliative care: a cross-national survey

Muldrew DHL, Kaasalainen S, McLaughlin D, Brazil K.

A Scoping Review to Map Empirical Evidence Regarding Key Domains and Questions in the Clinical Pathway of Delirium in Palliative Care

Lawlor PG, Rutkowski NA, MacDonald AR, Ansari MT, Sikora L, Momoli F, Kanji S, Wright DK, Rosenberg E, Hosie A, Pereira JL, Meagher D, Rice J, Scott J, Bush SH.

A randomised controlled pilot and feasibility study of music therapy for improving the quality of life of hospice inpatients

Porter S, McConnell T, Graham-Wisener L, Regan J, McKeown M, Kirkwood J, Clarke M, Gardner E, Dorman S, McGrillen K, Reid J.

Quality indicators for Palliative Day Services: A modified Delphi study

McCorry NK, O’Connor S, Leemans K, Coast J, Donnelly M, Finucane A, Jones L, Kernohan WG, Perkins P, Dempster M.

Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities

Duggleby W, Jovel Ruiz K, Ploeg J, McAiney C, Peacock S, Nekolaichuk C, Holroyd-Leduc J, Ghosh S, Brazil K, Swindle J, Forbes D, Woodhead Lyons S, Parmar J, Kaasalainen S, Cottrell L, Paragg J.

Findings From a Thematic Synthesis of Key Messages From a Palliative Care Research Network: The KINDLE Project

Nicholson E, Murphy T, Larkin P, Normand C, Guerin S.

Evaluating an educational programme for dignity care intervention with community nurses in Ireland

Connolly M, Charnley K, Collins R, Barry C, McIlfatrick S, Larkin P, Brenner M, Johnston B.

Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives

Donnelly S, Prizeman G, Coimín DÓ, Korn B, Hynes G.

2017 Publications

Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach

Hogden A, Foley G, Henderson RD, James N, Aoun SM

Funding models in palliative care: Lessons from international experience

Groeneveld EI, Cassel JB, Bausewein C, Csikós A, Krajnik M, Ryan K, Haugen DF, Eychmueller S, Keller HG, Allan S, Hasselaar J, Merino TGB, Swetenham K, Piper K, Fürst CJ, Murtagh FEM

How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA

Selman LE, Daveson BA, Smith M, Johnston B, Ryan K, Morrison RS, Pannell C, McQuillan R, De Wolf-Linder S, Pantilat SZ, Klass L, Meier D, Normand C, Higginson IJ.

Social and clinical determinants of preferences and their achievement at the end of life: prospective cohort study of older adults receiving palliative care in three countries

Higginson IJ, Daveson BA, Morrison RS, Yi D, Meier D, Smith M, Ryan K, McQuillan R, Johnston BM, Normand C, Bennett E, Cooper F, De Wolf-Linder S, Dzingina M, Ellis-Smith C, Evans C, Ferguson T, Henson L, Kaler P, Kane P, Klass L, Lawlor P, McCrone P, Molony S, Morrison S, Murtagh F, Pannell C, Pantilat S, Reison A, Selman L, Tobin K, Vohora R, Wei G.

Counting the cost of cancer: out-of-pocket payments made by colorectal cancer survivors

Ó Céilleachair A, Hanly P, Skally M, O’Leary E, O’Neill C, Fitzpatrick P, Kapur K, Staines A, Sharp L.

Complicated grief: Knowledge, attitudes, skills and training of mental health professionals: A systematic review

Dodd A, Guerin S, Delaney S, Dodd P.

Feeling Thanks and Saying Thanks: A Randomized Controlled Trial Examining If and How Socially Oriented Gratitude Journals Work

O’Connell BH, O’Shea D, Gallagher S.

Young Adult and Usual Adult Body Mass Index and Multiple Myeloma Risk: A Pooled Analysis in the International Multiple Myeloma Consortium (IMMC)

Birmann BM, Andreotti G, De Roos AJ, Camp NJ, Chiu BCH, Spinelli JJ, Becker N, Benhaim-Luzon V, Bhatti P, Boffetta P, Brennan P, Brown EE, Cocco P, Costas L, Cozen W, de Sanjosé S, Foretová L, Giles GG, Maynadié M, Moysich K, Nieters A, Staines A, Tricot G, Weisenburger D, Zhang Y, Baris D, Purdue MP.

Response to: Is prehabilitation limited to preoperative exercise?

Moran J, Guinan E, McCormick P, Larkin J, Mockler D, Hussey J, Moriarty J, Wilson F.

Evaluating a dignity care intervention for palliative care in the community setting: community nurses’ perspectives

McIlfatrick S, Connolly M, Collins R, Murphy T, Johnston B, Larkin P.

STOPPFrail (Screening Tool of Older Persons Prescriptions in Frail adults with limited life expectancy): consensus validation

Lavan AH, Gallagher P, Parsons C, O’Mahony D.

Nursing home manager’s knowledge, attitudes and beliefs about advance care planning for people with dementia in long-term care settings: a cross-sectional survey

Beck ER, McIlfatrick S, Hasson F, Leavey G.

If you are a member of AIIHPC PCRN or ECRF and would like to have one of your publications added to the page please contact Dr Busra Ertugrul, AIIHPC Research Support and Knowledge Translation Lead, at bertugrul@aiihpc.org.